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Day 1 – November 17, 2020

Session 1

Plenary: Welcome and Summit Description/Overview

Gopal Khanna, MBA
Director
Agency for Healthcare Research and Quality

Arlene S. Bierman, MD, MS
Director, Center for Evidence and Practice Improvement
Agency for Healthcare Research and Quality

• Slide Presentation (PDF, 2.7 MB).

Networking (Icebreaker)

Plenary: Conversations about Living with MCC

Presenters:

Jane Pederson, MD, MS
Chief Medical Quality Officer
Stratis Health

Richard Knight
President
American Association of Kidney Patients

Plenary: Moderated Discussion with Keynote Speaker Lisa Rubenstein, RAND Corporation

Moderator: Arlene Bierman, Agency for Healthcare Research and Quality

Presenter:

Lisa Rubenstein, MD, MSPH, FACP
Professor Emeritus of Medicine and Public Health
University of California, Los Angeles
Physician Policy Researcher
The RAND Corporation

• Focus: Deeper discussion of opportunities and challenges for transforming care for people living with MCC described in Pre-meeting Keynote Address Video:  and Slide Presentation (PDF, 410.3 KB).

Plenary: Session Closing Remarks and Look Ahead to Afternoon Activities

Presenter:

Arlene S. Bierman, MD, MS
Director, Center for Evidence and Practice Improvement
Agency for Healthcare Research and Quality

Session 2

Plenary: What We Know and Where Are the Gaps: Authors' Insights from Their Research

Moderator: Arlene Bierman, Agency for Healthcare Research and Quality

Presenters:

Judith Vick, MD, MPH
Resident Physician
Johns Hopkins Hospital

Jennifer Wolff, PhD
Professor
Johns Hopkins Bloomberg School of Public Health

• Premeeting Video:  and Slide Presentation (PDF, 2.7 MB).

Elizabeth Bayliss, MD, MSPH
Senior Investigator
Institute for Health Research
Professor of Family Medicine
University of Colorado School of Medicine
Kaiser Permanente Colorado

• Premeeting Video:  and Slide Presentation (PDF, 2.1 MB)

Lucy Savitz, PhD
Vice President, Health Research
Director
Center for Health Research
Kaiser Permanente  

David Dorr, MD, MS
Professor and Vice-Chair
Chief Research Information Officer
Oregon Health & Science University

Lipika Samal, MD, MPH
Assistant Professor
Brigham and Women's Hospital/Harvard Medical School

• Premeeting Video:  and Slide Presentation (PDF, 2.3 MB).

Plenary: Cutting Edge Methods for MCC Research

Presenter:  

Malaz Boustani, MD, MPH
Richard M. Fairbanks Professor of Aging Research
Indiana University

• Description: Overview of methodological challenges of developing, testing and implementing complex interventions for complex patients within diverse care settings and of possible solutions from complexity science, agile implementation, multilevel interventions, adaptive trials, rapid cycle evaluation methods, integrating quality improvement and implementation science, and mixed methods. 
• Premeeting Video

Small Group Discussion: Identifying Key Research Gaps

• Focus: This is the first of three sessions which together will generate and then refine a list of critical questions that future AHRQ-funded research could address in order to help transform care for people living with MCCs. At this session, participants will generate a list of research gaps or research questions in one of the three domains discussed in the commissioned papers.

Plenary: Reflections on the Day and Set Up for Next Day

Speaker:

Arlene S. Bierman, MD, MS
Director, Center for Evidence and Practice Improvement
Agency for Healthcare Research and Quality

Day 2: November 18, 2020

Plenary: Summary of the Previous Day and Charge for Today

Presenter:

Therese Miller, DrPH
Deputy Director
Center for Evidence and Practice Improvement
Agency for Healthcare Research and Quality

Small Group Discussion: Digging Deeper into Proposed Research Topics

• Focus:  During this second small group discussion, participants were assigned a limited set of research topics that emerged from the first group discussion and asked to (a) refine or reframe them into researchable questions and (b)prioritize the top 5 of among their revised questions, based on three criteria: responsiveness to known needs or challenges; expected likelihood and size of impact; feasibility of being able to conduct research/answer question.

Small Group Discussion:

• Focus: During this final small group discussion, participants will review the most promising topics for further research that emerged from across all three domains and seek to identify alignments across them and ways to combine them into innovative initiatives to transform care.

Plenary: Research Methods for Greatest Impact

Facilitator:

Malaz Boustani, MD, MPH
Richard M. Fairbanks Professor of Aging Research
Indiana University

Plenary: Where Do We Go from Here?

Speaker:

Arlene S. Bierman, MD, MS
Director, Center for Evidence and Practice Improvement
Agency for Healthcare Research and Quality