Issue Brief 23
Prepared for:
Agency for Healthcare Research and Quality
5600 Fishers Lane
Rockville, MD 20857
Contract Number HHSP233201500022I/75P00119F37006
Prepared by:
Helene M. Epstein, author, Dx IQ and Patient No More, independent national advocate for patients and families
Helen Haskell, M.S., Mothers Against Medical Error
Carole Hemmelgarn, M.S., M.S., Patients for Patient Safety US
Steven Coffee, M.A., E.M.C.Q.S.L., Patients for Patient Safety US
Ilene Corina, BCPA, Pulse Center for Patient Safety Education & Advocacy
Steve Burrows, Writer/Director, “Bleed Out,” HBO
Margo Burrows, Producer, “Bleed Out,” HBO
Traber Davis Giardina, Ph.D., M.S.W., Center for Innovations in Quality, Effectiveness and Safety, Michael E. DeBakey Veterans Affairs Medical Center and Baylor College of Medicine, Houston, TX
Kelly M. Smith, Ph.D., Michael Garron Hospital, Toronto East Health Network, Toronto, ON
Bill Gallagher, M.D., MedStar Health/Georgetown Department of Family Medicine, Washington, DC
MedStar Health Center for Diagnostic Systems Safety, Columbia, MD
Georgetown University School of Medicine, Washington, DC
Abirami Srivarathan, Ph.D., M.Sc., Center for Innovations in Quality, Effectiveness and Safety, Michael E. DeBakey Veterans Affairs Medical Center and Baylor College of Medicine, Houston, TX
Bat-Zion Hose, Ph.D., MedStar Health National Center for Human Factors in Healthcare, Columbia, MD
Georgetown University School of Medicine, Washington, DC
Kristen Miller, MSPH, MSL, DrPH, MedStar Health Center for Diagnostic Systems Safety, Columbia, MD
MedStar Health National Center for Human Factors in Healthcare, Columbia, MD
Georgetown University School of Medicine, Washington, DC
All authors are part of the AHRQ funded Patient-Partnered Diagnostic Center of Excellence as patient partners or members of the core research team.
This project was funded under contract number HHSP233201500022I/75P00119F37006 from the Agency for Healthcare Research and Quality (AHRQ) and U.S. Department of Health and Human Services.
The authors are solely responsible for this document’s contents, findings, and conclusions, which do not necessarily represent the views of AHRQ. Readers should not interpret any statement in this product as an official position of AHRQ or of the U.S. Department of Health and Human Services. None of the authors has any affiliation or financial involvement that conflicts with the material presented in this product.
Public Availability Notice. This product is made publicly available by AHRQ and may be used and reprinted without permission in the United States for noncommercial purposes, unless materials are clearly noted as copyrighted in the document. No one may reproduce copyrighted materials without the permission of the copyright holders. Users outside the United States must get permission from AHRQ to reprint or translate this product. Anyone wanting to reproduce this product for sale must contact AHRQ for permission.
Citation of the source is appreciated.
Suggested citation: Epstein HM, Haskell H, Hemmelgarn C, Coffee S, Burrows S, Burrows M, Corina I, Giardina T, Hose BZ, Smith KM, Gallagher W, Miller K. The Patient’s Role in Diagnostic Safety and Excellence: From Passive Reception towards Co-Design. Rockville, MD: Agency for Healthcare Research and Quality; September 2024. AHRQ Publication No. 24-0010-8-EF.
